I
walked into the elementary art room just a few hours after they had it on lockdown. The blue
carpet was stained pink from where you threw up. You’d had a seizure, they told
me. Another one. The stench of the powder they put over your cleaned up vomit
still lingering in the air, but you were gone.
I
went home, so scared for you, and your mother met me in the alley. She told me I
could go in and see you, even though you were asleep on the couch. When she
found me, I was standing in the dining room, too afraid to step into the next
room where you lay under an afghan… I was praying, begging God to make you
better. I needed my best friend. I turned and looked at your mom and finally
allowed the words that were echoing in my head to fall from my mouth.
“Will
he live,” I asked as tears stung my eyes. I couldn’t imagine losing you. She told
me you would, and I was relieved… but a few years later, I lost you to epilepsy
after all.
You’d
had another seizure, this one leaving you brain dead; you died a few days
later. I was angry. Angry at God for taking you from me. Angry at epilepsy for
causing the seizures. The students at school were allowed to go to the library
to speak with grief counselors, so that’s where I spent my whole day… but the
others were only there because they were sorry that they had always made fun of
you. You were different, and that’s what made you so special to me… but to
them, it was a game—a reason to make fun of and mock you. I became angry at the
others surrounding me at the table for treating you so terribly while you were
alive, but only feeling remorse once it was too late to take back their words. I
cried so hard I couldn’t breathe. I still can’t breathe when I think about it.
Across
the hall from the library was my mom’s classroom. I found her there with the lights
off in her free period. I wanted to disappear from everyone, leave the
cruelness that I was engulfed in. She picked up her box of paper to be recycled
and handed it to me. She told me to crumple pieces up and throw them as hard as
I could at the wall until I felt better. I made the wall my target, along with
the desks. The chalk board. The floor. It helped, but it couldn’t fix the
gaping hole in my heart that was left by you leaving.
Your
funeral was something I think you would have been proud of. The church
sanctuary was full, spilling over into the annex, down the stairs and out onto
the sidewalk. People to celebrate your life, and others to repent for their
cruelty. I’d never seen more people show support for you in the almost 10 years
I had known you. I was devastated, but I was proud.
Ten
years later, I was diagnosed with epilepsy myself. It hit my family hard, but I
was able to accept it because I’d been through it once with you. You may be
gone, but you’ve served as my inspiration for waking up every day and fighting
the fight that you just simply couldn’t fight anymore. I often think about you,
and who and what you’d have become if you were given the opportunity to grow up
and become an adult. What you’d have done if your life hadn’t been cut so
short.
Today
makes fifteen years since we lost you. Fifteen long years, but it seems just like
yesterday. I still think about you daily, and how inspiring you and your life
are to me. I hope I make you as proud as you always made me. Every day of the
past fifteen years, and every day until I’m gone from this place, too.
I
love you. I miss you so much.